Lyme Disease

Tonight I watched a youtube video of a teenage girl with Lyme disease who went undiagnosed for two years. Her symptoms were nearly identical with mine. Severe head pain which nothing helped and which would not let her sleep or lie down. Fatigue and frustration. Endless tests. And then it moved into her joints and there was pain in her fingers, toes, and knees. Sometimes she could not walk.

She had had a test for Lyme but it had been a false negative, and so she thought it had been ruled out. Doctors went on to do things like remove her braces and give her injections in her head for the pain but it did not help.

Today had been a most difficult day. I was up all night in pain and by 3 am was considering the hospital. I limped around the house and tried to think what to do, where to go. Is there a place you can check into and they will try to help you get away from your pain?

At 7 am I took more pain medication, this time fioricet as head had been roaring into migraine land. From 9:30 am to 11:30 am I had a pleasant and deep sleep.

I made it to Olympia Session #5. She is a very gentle person with very strong hands. I was able to rest in stillness on her table, unlike last week when pain had me pitching inside. She thought the pain that Dr. Chenitz had accidentally triggered had stirred up my parasympathetic/sympathetic nervous system so she did calming things and I was calmed.

I had images of crickets and owls. And starry skies in the desert. Warmth also.

But by 7 pm I was back in screaming knee pain and so hot packed it and took more ibuprofen. And that is when I watched the YouTube video. I will try to find a Lyme specialist. Have been considering the possibility of Lyme but never seriously until this thing spread to my left knee early 2010. And then the x-ray was done and the knee looked fine, which I knew it would.

But it screams so loudly I want a crocodile to come bite it off. It screams and screams and will not let me rest. Just like my head.

The first year we were in New Jersey was a crazy year for ticks and I was bitten a lot and both of our dogs ended up getting Lyme. That was way back in 2005, 2006. But it was in 2007 that severe pain showed up in my shoulder/back, and that involves a joint I guess though I don’t think of it that way.

I look around the room and wonder what happened to the person here, how did these piles and mounds and stacks of papers and books and miscellaneous not get cleared away. Why is her hair unwashed? No one has dusted in centuries. The person who was here has gotten very sick and been called away to the kingdom of illness.

Will 2011 hold answers for me?